The ACT Cancer Registry (ACT CR) receives notifications of cancer in the ACT. The Registry maintains a record of all cases of cancer diagnosed in ACT residents since 1994 except basal cell carcinomas and squamous cell carcinomas. The ACT CR is a case-based registry in which all notifications relating to a particular case of cancer are linked to form a single record. A case of cancer is the occurrence of a malignant neoplasm in a particular person. Therefore a case of malignant melanoma in a particular person counts as one case. If the same person subsequently develops leukaemia, the leukaemia counts as a second case.
The ACT CR provides population-based statistics about cancer incidence, mortality, and case fatality (survival) for the residents of the ACT. The ACT CR collects a minimum data set for each cancer case, including place of residence, sex, date of birth, date of diagnosis, cancer site and morphology, means of diagnosis, whether there were multiple primary sites of cancer, country of birth, and date, place and cause of death, where applicable.
It is possible to obtain ACT CR data back to 1982, but the CHeReL and ACT CR data custodian recommend using data from 1994 for linkage studies. From 1982 to 1994 the quality of the linkage is likely to be compromised by missing or estimated dates of birth, and incomplete pathology reports. Researchers should therefore exercise caution if interpreting results including pre 1994 data. The ACT Cancer Registry (ACT CR) is a case- rather then person-based registry. If two cancers occur in a person, the ACT CR counts this as two cases. The ACT Cancer Registry (ACT CR) records new cancer cases. Cancer recurrences are not captured as part of the ACT CR. When linking ACT CR to treatment data (e.g. hospitalisations) note that treatment may occur many years after the original diagnosis and may be associated with a cancer recurrence rather than the original notification.
Administrative. The cancer data collected by the ACT CR is used to monitor cancer trends, in order to assist in the planning, management and assessment of Tasmanian cancer control activities. The data also contributes to the national Australian Cancer Database and international cohort.
ACT state data
The ACT CR is managed by the ACT Government Health Directorate, and operates under the authority of the Public Health Regulation 2000. Since 1994, all public and private pathology laboratories, hospitals, radiation oncology clinics and nursing homes in the ACT have been required by law to notify the ACT CR of cancer in people or human tissues.
| Language | english |
| Format | csv |
| Coding | ICD-10-AM; ICD-03 |
